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SKIP TO MAIN CONTENT Search Search Generic filters Hidden label Exact matches only Hidden label Search in title Hidden label Search in content Hidden label Search in excerpt Home En Español International Request Information DONATE About TSC About TSC New treatments today. A cure tomorrow. What is TSC? How is TSC Diagnosed? Signs and Symptoms of TSC Learn Engage Donate Newly Diagnosed Newly Diagnosed On this journey you are never alone. Get Support Now 5 Things to Know about TSC Choosing a Healthcare Provider Learn Engage Donate Individuals & Families Individuals & Families The support you want. The information you need. COVID-19 Treatment Guidelines TSC Clinics Parents/Caregivers Adults Young Adults School Issues TSC Clinical Trials Find Local Resources E-Newsletter and Podcast Series Publications and Sample Letters Videos and Webinars TSC Academy Biosample Repository and Natural History Database Patient-Focused Drug Development Learn Engage Donate Healthcare Professionals Healthcare Professionals Often undetected. Easily misdiagnosed. What you need to know about TSC. Peer-to-Peer Listserv Diagnosis, Surveillance, and Management TSC Clinics Key Medical Publications CME Opportunities Professional Advisory Board Learn Engage Donate Researchers Researchers Closer to a cure…with your help. Grants and Funding Preclinical Research Natural History Database Biosample Repository Clinical Research Consortium Research Conferences Research Resources International Scientific Advisory Board TSC Alert Learn Engage Donate Donors Donors The support they need is the support you can give. Donors Change the Future of TSC Research Outreach Our Impact Success Stories Learn Engage Donate About Us About the Our Story Our Vision Our Team Our Leadership Our Results Our Corporate Policies FAQs Careers Contact Us Media Shop for TSC Privacy Policy Sitemap Learn Engage Donate Hope no matter how complex Join Today Learn Engage Donate Learn What is tuberous sclerosis complex? TSC is a genetic disorder that causes tumors to form in various organs, primarily the brain, eyes, heart, kidneys, skin and lungs. It’s also the leading genetic cause of both epilepsy and autism. Read More Newly Diagnosed and Need Help? Regardless of the age at diagnosis, the journey of TSC can certainly be daunting. We are here to help. Read More Signs and Symptoms of TSC Because TSC affects no two people the same, there is no sure way to predict where and how the disorder will manifest. To better understand its potential impact, click below on the organs most often targeted. Brain & Neurological Function Eyes Kidneys Skin Lungs Heart Teeth Other Organ Systems Engage Want to get more involved? There are plenty of ways to assist us in our efforts. Take a look at the options below and see what works for you. We need your help! Volunteer Opportunities Government Advocacy Join Our Mail List Become a Member Find Your Local Community Alliance Events Calendar Get Social TSC Connect Donate Your Gift Will Make a Difference By donating to the you can directly touch the lives of those affected by tuberous sclerosis complex (TSC). Your gift of support can come in many forms, including: Ways to Give Donate Now Fund Research Honor a Loved One Leave a Legacy/Endowment Give at Work Attend an Event Shop for TSC Spotlight on Why did the decide to rebrand? The began as a grassroots organization founded by moms whose children were diagnosed with TSC. Since then, we’ve grown to a global nonprofit driving research, rai... more How else are we making a difference? Learn more Forms Equity, Diversity & Inclusion Task Force Learn More Learn About our 2021 E-Webinar Series! Learn More COVID-19 & TSC Resources Learn More Listen to our Podcast Series! Listen Here News and Events -- -- President & CEO Kari Luther Rosbeck Featured in Inspiring Collaboration Story -- -- President & CEO Kari Rosbeck featured on Successful Nonprofits Podcast! -- -- Advocates for Prioritization of Individuals with Rare Diseases and Caregivers for COVID-19 Vaccines -- -- Learn More About Our 2021 E-Webinar Series! -- -- COVID-19 Vaccine Position Statement TS Alliance on Facebook TS Alliance on YouTube TS Alliance on Twitter TS Alliance on Instagram TS Alliance on LinkedIn TS Alliance on Inspire About the Our Story Our Vision Our Team Our Leadership Our Results Our Corporate Policies FAQs Careers Contact Us Media Shop for TSC Privacy Policy Sitemap 8737 Colesville Road, Suite 400 Silver Spring, Maryland 20910-4487 USA 800.225.6872 (Toll-Free) 301.562.9890 info@tscalliance.org This website is made possible through educational grants from: The information you obtain at this site is not, nor is it intended to be, medical advice. Full Disclaimer | © 2021 | Website by Teramark Notice anything new? Notice anything new? We’re still the same organization – just with an updated look and feel! Learn more about our rebrand to the × This website uses cookies to improve your user experience. By using this site you agree to our use of cookies. Please read our Privacy Policy to learn more. Ok...